TIPNA Learning and sharing and caring for each other around the world    FAQ   Search   Memberlist   Usergroups   Register   Profile   Log in to check your private messages   Log in  The time now is Mon Feb 08, 2010 5:06 pm TIPNA Forum Index View unanswered posts  Forum   Topics   Posts   Last Post  Medical   Welcome Newbies Here's your chance to introduce yourself, and if you like, to present your case. If so, describe the history of your condition, tests done, test results, diagnosis results, treatment results so far, and what area you live in, and we will do our very best to help. Moderator The Busy Bees 522 4062 Sun Feb 07, 2010 4:51 pm GregT Diagnosis and Conditions Related to PN PN and PNE can be very difficult to diagnose. Here we discuss diagnostic aspects of our cases, diagnosis techniques in general, conditions related to PN, and much more. Moderator The Busy Bees 618 4111 Tue Jan 26, 2010 8:47 pm guggi Non-Surgical Treatment Many cases of PN can be cured without surgery, especially if treated early. Even if surgery is done, non-surgical treatments are usually also necessary to maximize successful treatment. Here we discuss steroids, physical therapy of many kinds, ART, psychological techniques, exercise, and more. Moderator The Busy Bees 344 1990 Fri Feb 05, 2010 9:30 am Ray Paquette Surgery Surgery remains the best treatment alternative for most full blown cases of high pain PNE. However, there is much that is still unknown and controversial. Here we discuss all this and more. Moderator The Busy Bees 373 4052 Sun Feb 07, 2010 9:18 pm guggi Dealing with Pain Chronic pain patients spend exorbitant amounts of their lives deaing with their pain. This is made all the more challenging if you cannot sit or do other normal activities. Here we discuss medications, psychological approaches, impact on social life, and more. Moderator The Busy Bees 536 2625 Thu Feb 04, 2010 11:02 am GregT Dealing with Sitting A classic symptom of PN is you can no longer sit normally. Here we discuss all the issues related to this: sitting cushions, the importance of not sitting, special chairs, and more. Moderator The Busy Bees 97 479 Mon Nov 30, 2009 12:37 pm Celeste Botox With botox being a hot topic with lots of information being posted, we are alloting a separate section for it. You are welcome to post articles and share your experiences with botox treatments. TIPNA neither dismisses nor endorses one treatment over another. We realize what may work for one person, may not for another. Moderator The Busy Bees 215 1234 Mon Jan 11, 2010 5:30 pm Karen Wiesner Physical Therapy Physical Therapy can be an effective treatment approach both for those people suffering pain and functional symptoms as well as for post-op recovery. In some cases, PNE type symptoms may actually be pelvic floor dysfunction and may be improved with PT. A skilled and knowledgable therapist is a must. In this section, we share our experiences with Physcial Therapy treatments. Moderator The Busy Bees 118 877 Tue Feb 02, 2010 10:13 pm sunnyone Places   Looking for a doctor ? If you have PN, few things make as much difference as seeing the right doctor. But due to the rarity of PN, there are few PN aware doctors. Here we share information about the few that are available, such as those that may be in your area, who does which aspects of diagnosis and treatment, and more. Moderator The Busy Bees 80 343 Thu Feb 04, 2010 3:52 pm carmela b Nantes, France For those interested in or planning a trip to Nantes for testing or surgery. Moderator The Busy Bees 36 180 Wed Jan 06, 2010 10:05 pm Bridget Aix-en-Provence, France For those interested in or planning a trip to Aix-en-Provence for testing or surgery. Moderator The Busy Bees 5 40 Wed Oct 14, 2009 8:39 pm Peter Houston For those interested in or planning a trip to Houston for testing or surgery. Moderator The Busy Bees 32 135 Tue Dec 29, 2009 12:24 pm Celeste United Kingdom Get to know your fellow Brits, and also discuss the NHS, the state of PN awareness in the UK, doctors in the UK, and so on. Yanks are also invited to practice their British, Irish, and Scottish here. :-) Moderator The Busy Bees 63 582 Thu Dec 31, 2009 5:39 am Biaba Australia This forum is devoted to those people who live in Australia and who are looking to share their experiences. Hopefully, more can be doctors can be located who can address pudendal neuralgia.     58 356 Thu Jan 21, 2010 4:02 am jonehank Other Languages   En Français Forum de discussion sur la névralgie du nerf pudendal. L'endroit idéal pour discuter tout ce qui touche de près ou de loin cette condition: symptomes, traitements, résultats, support, médecins, frais médicaux... Moderator The Busy Bees 25 66 Fri May 09, 2008 10:47 am François Español (This would be an introduction in Spanish. We are looking for someone who can write this and moderate this forum. If you would like to volunteer, please contact us. We are also looking for people to handle other languages.) Moderator The Busy Bees 1 1 Sat May 26, 2007 2:40 pm victorspain Italiano Forum di discussione sulla nevralgia del nervo pudendo. Il luogo ideale per discutere tutto cio' che riguarda da vicino o da lontano questa condizione:sintomi, trattamenti, risultati, supporti, medici, spese mediche..."     42 88 Mon Jan 29, 2007 3:02 am claro64 General   Insurance and Expenses Discuss your insurance and expense problems here. Moderator The Busy Bees 84 232 Sat Jan 16, 2010 2:19 am Goddard Disability How to deal with being unable to work, unable to lead an independent life, filing for disability, etc. Moderator The Busy Bees 14 51 Tue Sep 08, 2009 10:24 pm ramana Social Mostly non-medical stuff. Come here when you're down and need a shoulder, or when you're up and can help someone else. Or just give us something funny to laugh about or something interesting to ponder. Moderator The Busy Bees 168 1164 Mon Jan 18, 2010 7:00 am jonehank Community A place for all members to discuss virtual community issues, TIPNA issues, and website operations. Moderator The Busy Bees 105 548 Sun Feb 07, 2010 11:45 pm GregT All times are GMT - 5 Hours Who is Online Our users have posted a total of 30475 articles We have 1642 registered users The newest registered user is cfalvey In total there are 5 users online :: 1 Registered, 0 Hidden and 4 Guests   [ Administrator ]   [ Moderator ] Most users ever online was 73 on Sat Nov 03, 2007 1:52 pm Registered Users: aleksgirl This data is based on users active over the past five minutes Log in Username:    Password:      Log me on automatically each visit     New posts    No new posts    Forum is locked Powered by phpBB © 2001, 2005 phpBB Group