We have such a huge percentage of our "registrants" who are not people who want to register on Tipna, but are spammers. Also, some simple tips on having a successful registration process.

3

3

Sat Jun 18, 2011 4:09 pm

GregT

Since we have nobody talking about anything related to PN on our forum and we've already paid up our 2011 fees, we ought to at least get some benefit out of this website. So, on this forum, you can talk about whatever is on your mind. From politics to religion, television, just post away.

Moderator: The Busy Bees

81

861

Sun Apr 15, 2012 11:57 am

lexie

Here's your chance to introduce yourself, and if you like, to present your case. If so, describe the history of your condition, tests done, test results, diagnosis results, treatment results so far, and what area you live in, and we will do our very best to help.

Moderator: The Busy Bees

650

5533

Wed May 16, 2012 1:08 pm

GregT

PN and PNE can be very difficult to diagnose. Here we discuss diagnostic aspects of our cases, diagnosis techniques in general, conditions related to PN, and much more.

Moderator: The Busy Bees

688

4674

Thu Mar 29, 2012 12:55 am

GregT

Many cases of PN can be cured without surgery, especially if treated early. Even if surgery is done, non-surgical treatments are usually also necessary to maximize successful treatment. Here we discuss steroids, physical therapy of many kinds, ART, psychological techniques, exercise, and more.

Moderator: The Busy Bees

388

2367

Wed Dec 21, 2011 10:43 pm

Rich

Surgery remains the best treatment alternative for most full blown cases of high pain PNE. However, there is much that is still unknown and controversial. Here we discuss all this and more.

Moderator: The Busy Bees

458

5127

Sat Mar 31, 2012 10:05 pm

GregT

Chronic pain patients spend exorbitant amounts of their lives deaing with their pain. This is made all the more challenging if you cannot sit or do other normal activities. Here we discuss medications, psychological approaches, impact on social life, and more.

Moderator: The Busy Bees

584

2909

Thu May 17, 2012 8:26 pm

Joddy

A classic symptom of PN is you can no longer sit normally. Here we discuss all the issues related to this: sitting cushions, the importance of not sitting, special chairs, and more.

Moderator: The Busy Bees

113

559

Mon Sep 19, 2011 7:40 pm

GregT

With botox being a hot topic with lots of information being posted, we are alloting a separate section for it. You are welcome to post articles and share your experiences with botox treatments. TIPNA neither dismisses nor endorses one treatment over another. We realize what may work for one person, may not for another.

Moderator: The Busy Bees

229

1360

Wed Apr 11, 2012 8:08 pm

lexie

Physical Therapy can be an effective treatment approach both for those people suffering pain and functional symptoms as well as for post-op recovery. In some cases, PNE type symptoms may actually be pelvic floor dysfunction and may be improved with PT. A skilled and knowledgable therapist is a must. In this section, we share our experiences with Physcial Therapy treatments.

Moderator: The Busy Bees

131

971

Thu Apr 19, 2012 10:58 pm

lexie

If you have PN, few things make as much difference as seeing the right doctor. But due to the rarity of PN, there are few PN aware doctors. Here we share information about the few that are available, such as those that may be in your area, who does which aspects of diagnosis and treatment, and more.

Moderator: The Busy Bees

91

450

Fri Mar 16, 2012 8:09 am

GregT

For those interested in or planning a trip to Nantes for testing or surgery.

Moderator: The Busy Bees

36

181

Wed Feb 10, 2010 1:23 pm

GregT

For those interested in or planning a trip to Aix-en-Provence for testing or surgery.

Moderator: The Busy Bees

5

42

Wed May 12, 2010 8:18 pm

GregT

For those interested in or planning a trip to Houston for testing or surgery.

Moderator: The Busy Bees

38

185

Tue May 01, 2012 5:46 pm

GregT

Get to know your fellow Brits, and also discuss the NHS, the state of PN awareness in the UK, doctors in the UK, and so on. Yanks are also invited to practice their British, Irish, and Scottish here. :-)

Moderator: The Busy Bees

66

594

Thu Feb 03, 2011 12:32 pm

justin

This forum is devoted to those people who live in Australia and who are looking to share their experiences. Hopefully, more can be doctors can be located who can address pudendal neuralgia.

60

383

Sun Dec 04, 2011 9:16 pm

jacko

Forum de discussion sur la névralgie du nerf pudendal. L'endroit idéal pour discuter tout ce qui touche de près ou de loin cette condition: symptomes, traitements, résultats, support, médecins, frais médicaux...

Moderator: The Busy Bees

26

67

Thu Apr 26, 2012 11:00 pm

Oceale

(This would be an introduction in Spanish. We are looking for someone who can write this and moderate this forum. If you would like to volunteer, please contact us. We are also looking for people to handle other languages.)

Moderator: The Busy Bees

1

1

Sat May 26, 2007 2:40 pm

victorspain

Forum di discussione sulla nevralgia del nervo pudendo. Il luogo ideale per discutere tutto cio' che riguarda da vicino o da lontano questa condizione:sintomi, trattamenti, risultati, supporti, medici, spese mediche..."

42

88

Mon Jan 29, 2007 3:02 am

claro64

Discuss your insurance and expense problems here.

Moderator: The Busy Bees

88

252

Fri Mar 16, 2012 7:21 pm

GregT

How to deal with being unable to work, unable to lead an independent life, filing for disability, etc.

Moderator: The Busy Bees

18

71

Fri Oct 28, 2011 3:58 pm

zinnia

Mostly non-medical stuff. Come here when you're down and need a shoulder, or when you're up and can help someone else. Or just give us something funny to laugh about or something interesting to ponder.

Moderator: The Busy Bees

176

1212

Thu May 26, 2011 10:29 pm

guggi

A place for all members to discuss virtual community issues, TIPNA issues, and website operations.

Moderator: The Busy Bees

105

555

Tue Nov 23, 2010 1:45 am

GregT