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Welcome Newbies
Here's your chance to introduce yourself, and if you like, to present your case. If so, describe the history of your condition, tests done, test results, diagnosis results, treatment results so far, and what area you live in, and we will do our very best to help.
Moderator The Busy Bees |
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Sun Jun 21, 2009 5:27 pm Karen Wiesner  |
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Diagnosis and Conditions Related to PN
PN and PNE can be very difficult to diagnose. Here we discuss diagnostic aspects of our cases, diagnosis techniques in general, conditions related to PN, and much more.
Moderator The Busy Bees |
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Fri Jun 26, 2009 11:38 pm luv2shop518  |
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Non-Surgical Treatment
Many cases of PN can be cured without surgery, especially if treated early. Even if surgery is done, non-surgical treatments are usually also necessary to maximize successful treatment. Here we discuss steroids, physical therapy of many kinds, ART, psychological techniques, exercise, and more.
Moderator The Busy Bees |
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Fri Jun 26, 2009 10:56 am peg  |
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Surgery
Surgery remains the best treatment alternative for most full blown cases of high pain PNE. However, there is much that is still unknown and controversial. Here we discuss all this and more.
Moderator The Busy Bees |
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Fri Jul 03, 2009 10:49 am GraceUnderFire  |
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Dealing with Pain
Chronic pain patients spend exorbitant amounts of their lives deaing with their pain. This is made all the more challenging if you cannot sit or do other normal activities. Here we discuss medications, psychological approaches, impact on social life, and more.
Moderator The Busy Bees |
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Sat Apr 18, 2009 4:34 pm jimf11  |
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Dealing with Sitting
A classic symptom of PN is you can no longer sit normally. Here we discuss all the issues related to this: sitting cushions, the importance of not sitting, special chairs, and more.
Moderator The Busy Bees |
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Thu Jul 02, 2009 1:19 am bindy15  |
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Botox
With botox being a hot topic with lots of information being posted, we are alloting a separate section for it. You are welcome to post articles and share your experiences with botox treatments. TIPNA neither dismisses nor endorses one treatment over another. We realize what may work for one person, may not for another.
Moderator The Busy Bees |
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Fri May 22, 2009 11:23 pm bubbles  |
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Physical Therapy
Physical Therapy can be an effective treatment approach both for those people suffering pain and functional symptoms as well as for post-op recovery. In some cases, PNE type symptoms may actually be pelvic floor dysfunction and may be improved with PT. A skilled and knowledgable therapist is a must. In this section, we share our experiences with Physcial Therapy treatments.
Moderator The Busy Bees |
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Tue Apr 07, 2009 12:55 pm jbeav1  |
| Places |
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Looking for a doctor ?
If you have PN, few things make as much difference as seeing the right doctor. But due to the rarity of PN, there are few PN aware doctors. Here we share information about the few that are available, such as those that may be in your area, who does which aspects of diagnosis and treatment, and more.
Moderator The Busy Bees |
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Wed Nov 12, 2008 7:59 am jess188  |
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Nantes, France
For those interested in or planning a trip to Nantes for testing or surgery.
Moderator The Busy Bees |
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Sun May 25, 2008 3:54 am Stephanie P  |
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Aix-en-Provence, France
For those interested in or planning a trip to Aix-en-Provence for testing or surgery.
Moderator The Busy Bees |
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Wed Dec 17, 2008 11:28 pm pianogal  |
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Houston
For those interested in or planning a trip to Houston for testing or surgery.
Moderator The Busy Bees |
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Tue Aug 05, 2008 9:59 am Celeste  |
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United Kingdom
Get to know your fellow Brits, and also discuss the NHS, the state of PN awareness in the UK, doctors in the UK, and so on. Yanks are also invited to practice their British, Irish, and Scottish here. :-)
Moderator The Busy Bees |
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Fri Jun 05, 2009 10:22 am Margot57  |
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Australia
This forum is devoted to those people who live in Australia and who are looking to share their experiences. Hopefully, more can be doctors can be located who can address pudendal neuralgia.
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Thu Jun 18, 2009 12:58 am Stephanie P  |
| Other Languages |
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En Français
Forum de discussion sur la névralgie du nerf pudendal. L'endroit idéal pour discuter tout ce qui touche de près ou de loin cette condition: symptomes, traitements, résultats, support, médecins, frais médicaux...
Moderator The Busy Bees |
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Fri May 09, 2008 10:47 am François  |
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Español
(This would be an introduction in Spanish. We are looking for someone who can write this and moderate this forum. If you would like to volunteer, please contact us. We are also looking for people to handle other languages.)
Moderator The Busy Bees |
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Sat May 26, 2007 2:40 pm victorspain  |
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Italiano
Forum di discussione sulla nevralgia del nervo pudendo. Il luogo ideale per discutere tutto cio' che riguarda da vicino o da lontano questa condizione:sintomi, trattamenti, risultati, supporti, medici, spese mediche..."
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Mon Jan 29, 2007 3:02 am claro64  |
| General |
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Insurance and Expenses
Discuss your insurance and expense problems here.
Moderator The Busy Bees |
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Wed Jan 07, 2009 2:48 pm georgie  |
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Disability
How to deal with being unable to work, unable to lead an independent life, filing for disability, etc.
Moderator The Busy Bees |
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Tue Feb 19, 2008 11:42 pm Chloe  |
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Social
Mostly non-medical stuff. Come here when you're down and need a shoulder, or when you're up and can help someone else. Or just give us something funny to laugh about or something interesting to ponder.
Moderator The Busy Bees |
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Wed Jan 14, 2009 10:33 pm ssim  |
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Community
A place for all members to discuss virtual community issues, TIPNA issues, and website operations.
Moderator The Busy Bees |
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Thu May 28, 2009 9:34 am jimf11  |